Emphysema sufferer fears loss of access to life-changing drug

Johnny Hannon compares uncertainty over drug availability to being on death row

Johnny Hannon (67) was diagnosed with a genetic condition called Alpha 1 antitrypsin deficiency which led to him developing 80pc emphysema in his late 50s. Photograph: Facebook
Johnny Hannon (67) was diagnosed with a genetic condition called Alpha 1 antitrypsin deficiency which led to him developing 80pc emphysema in his late 50s. Photograph: Facebook
  • Join The Irish Times on WhatsApp and stay up to date

  • Sign up for push alerts to get the best breaking news, analysis and comment delivered directly to your phone

  • Listen to In The News podcast daily for a deep dive on the stories that matter

Barry Roche

Barry Roche

Barry Roche is Southern Correspondent of The Irish Times