Genetic testing waiting lists causing challenges for families
Preventative speciality can diagnose rare and inherited health conditions but difficulty accessing the service is affecting family planning, research finds
cystic fibrosis
Mayo nurse who ‘escaped’ from Alcatraz completes marathon Clare Island swim
Grandmother Ann Ivers (62) from Kiltimagh joins group of 45 in charity swim two years after swimming from famous prison island to San Francisco
Orla Tinsley: Competing to stay alive should not be our reality, but it is
How can we move towards an idea of community rather than competition for care?
‘Groundbreaking’: Cystic fibrosis drug is safe and effective in newborns, new research shows
Ivacaftor - sold under trade name Kalydeko - previously available to babies aged four months or older
Mothers with cystic fibrosis: ‘We’ve lives we never thought we could as no one thought we’d still be alive’
The introduction of highly effective medicines has allowed some people to fulfil their desire to have children
Cystic fibrosis: What is it and what does the future hold with improving treatments?
The introduction of new drug therapies in the last decade has given people with condition a better quality of life and increased longevity
Sometimes, when you need a witness – or Ed Sheeran – social media can be a source for good
Orla Tinsley: Social media morphs into a space to write intentionally and lyrically when picking up a pen is not an option
Irish woman successfully summits Mount Kilimanjaro with a harp
Siobhán Brady successfully completed her quest to reach the top of Africa’s highest peak on Tuesday, raising funds for Cystic Fibrosis Ireland and Harp Ireland
Cystic fibrosis drug group Vertex sees 26% jump in revenues at Irish unit
Sales of Kaftrio driving group at US pharmaceutical group which specialises in Ireland’s most common life-threatening inherited disease
Cystic fibrosis patients defy Harris with Orkambi protest
Hundreds demonstrate outside Dáil in support of free access to groundbreaking drug
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