The film-maker Simon Fitzmaurice has motor neuron disease. Now able to move only his eyes, and unable to take an active part in the lives of his five young children, he has written them a powerful memoir

At first, Simon Fitzmaurice found writing his book ‘It’s Not Yet Dark’ a deeply frightening task full of painful retrospection but it became a comfort as it grew into a record of his love for his children

letting it shine

A father of five writes about the strangeness of living with illness and his hopes for his next movie